For quite a while when people asked how everything was going with Luke I described it like this:
"It feels like we are on the outside of the bubble of Down Syndrome, looking in, just riding along."
It felt like a miracle that Luke started walking independently on March 21st, which just so happens to be World Down Syndrome Day! You can't make this stuff up. I couldn't believe that after so many months of sickness he had continued to make progress.
Luke continues to have respiratory issues. Right now he is being treated for pneumonia which we had tried to get rid of just 3 weeks ago. It's hard to continually say that "Luke is sick." I am a pretty positive person and yet I can't lie when people ask how it's going. It sucks. It's exhausting to have a sick child. I can no longer say "Besides having Down Syndrome, he is healthy and doing great." The fact is, he is sick more often than he is well. He catches every little illness that is within a mile of us and takes twice as long to get over it. He gets fevers. He gets worn out easily. His body is just not very strong.
The amazing part is that while he is often sick, he is also learning so much and making tons of progress!
We are so blessed to have amazing therapists that keep me motivated, and keep Luke on track. He still isn't verbalizing very much, but he has really taken off with sign language. He understands a lot of what we say and sign, but is just beginning to communicate back to us.
Signs Luke can do himself:
Music (His favorite sign)
Flower (He uses this for anything pretty)
Dog (His first sign)
Words Luke can say (although he doesn't use them very often):
Papa (my dad) - used the most
Aah Duh (Addie, our dog)
Chi Chi (Chicken)
tay too (thank you)
Hospital Stay Phone Pictures - February 2012