Tuesday, October 2, 2012


When Luke was born I wondered when someone I knew would have a child with Down syndrome. It was sort of a strange, selfish wish really. It wasn't that I wanted someone else to go through the pain and struggles of those first few days, weeks ... it was that I was excited to share the joy that came out of those times.  I want to welcome to the world two little boys born with an extra chromosome in the past 2 months. I am so proud to know you and your parents, and I can't wait to share the joys and struggles that are present in this journey.


I love being outside in autumn.  I love it so much that my house gets really messy and nothing gets done inside because I know that soon I will have all the inside time I need or want.  Last summer Luke was stationary.  This summer ... well, he is mobile and loves to eat dirt, or rocks, or sticks, or anything else that is within reach.  That has made out outdoor time a little more exciting this summer. 

Today I was not feeling well and yet, as you parents know, our job doesn't stop just because we are under the weather.  After attempted naps that did not happen and Tylenol that did not work, we went outside.  I was pretty sure that Luke would start putting things in his mouth and we would have to go in, but instead he discovered the leaves.  He crawled up the hill to the backyard and found a little spot right next to the woods and just grabbed leaves and threw them up in the air over and over.  Not once did he try to eat them  :)  Progress!!
My only regret was not catching the beautiful smiles that were quick and brief as the the leaves fell down on him.
While Luke entertained himself with the leaves, Gwen and Colin worked hard at shucking beans from the garden.  They had fun finding all the different colors of beans in the drab and dried out pods.
Get outside and into a tree before it gets cold!
On Saturday, October 6th, we will be participating in the Step Up for Down Syndrome walk in La Crosse, Wisconsin.  We have been involved with the local organization, Children of the Heart, since Luke was born.  If you live in the area we would LOVE to have you walk with us. 
If you are interested in donating to Luke's team - here is the link.  
Fundraising is not my forte - but in this case I see it as a way to give back to an organization that has been an invaluable resource to our family for the past 20 months.